STANDING TOGETHER
VERSUS CMT
Dedicated to accelerating research, supporting families, and finding a cure for Charcot-Marie-Tooth disease through community and innovation.
UNDERSTANDING THE CONDITION
WHAT IS CHARCOT-MARIE-TOOTH?
Charcot-Marie-Tooth (CMT) is a group of inherited disorders that cause nerve damage, mostly in the arms and legs (peripheral nerves). It’s one of the most common inherited neurological disorders, affecting approximately 1 in 2,500 people globally.
While CMT is currently incurable, it is not fundamentally fatal. Those living with CMT often experience muscle weakness, decreased muscle size, decreased sensation, hammertoes, and high arches. Our goal is to shift the narrative from managing symptoms to actively finding a cure.